H.O.P.E... Help Our Plight End
Hope is all that we have since the day our son, Ryan, was diagnosed with Duchenne muscular dystrophy.
“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body.” ~ Elizabeth Stone
Never would we have thought that this could happen to our beautiful son. However, that is what most people say when facing such a devastating possibility that soon becomes an evident reality. When Ryan was diagnosed with DMD, we were forced to face our worst nightmare- that our child had a fatal disorder for which there is no treatment or cure. Although our dreams for Ryan's lifelong future were stolen by this news, HOPE was left in its place.
“Life is not about waiting for the storm to pass... It's about learning to dance in the rain” ~ Unknown
Hope is the inspiration for Ryan's Quest. We founded this organization within two short months of learning of Ryan's diagnosis. We endured many sleepless nights and days where the hurt and tears felt like they would never cease. Until suddenly, we became enlightened. We knew that crying wouldn't save Ryan. We needed to fight this disease. We learned how to focus the intensity of our emotions into saving Ryan and other boys affected by Duchenne by increasing awareness and funding for DMD research through Ryan's Quest.
“You can really change the world if you care enough” ~ Unknown
Funding for Duchenne Muscular Dystrophy has allowed scientists to take great strides toward better treatments and possibilities of finding a cure for this disease. Significant advances in molecular medicine and gene therapy have been made. Major biotech and pharmaceutical companies are now investing in research that will bring DMD therapies from the lab into our homes. Advocates are also working hard to gain the support of the federal government so that funds may be allocated on research for a cure. However, more funding is needed in order to further these efforts and to save these boys. Within the DMD community, experts agree that we are on the brink of a scientific breakthrough. “It is no longer a matter of IF...it is a matter of WHEN”. However, time is working against Ryan and these boys each day. We must act now to save their lives. DMD research has attained a promising team of doctors, scientists and families who are committed to this cause...we just need the resources to succeed in finding a cure!
“In a moment of decision, the best thing you can do is the right thing to do. The worst thing you can do is nothing.” ~ Theodore Roosevelt
In life there are decisions to make each day. Each family, professional and individual possesses the ability to create change for one or many people. As a first grade teacher, I make numerous decisions in one school day; affecting the lives of all children who enter my classroom. These decisions impact the educational, emotional and physical well-being of my students. There is one question that guides my every decision as a teacher ...”What would I do if this were my child?” Over one-third of all boys with DMD are the result of a spontaneous genetic mutation...meaning this could happen to anyone! We have made the choice to fight this disease for our son by gaining support and funding for DMD research. So, I must ask...What would you do if this were your child?
“Whether it's the best of times or the worst of times, it's the only time we have.” ~ Art Buchwald
Ryan's big brown eyes and contagious smile warm the hearts of everyone he meets. Although we know the obstacles that lie ahead of him, Ryan does not. He lives life with a smile on his face and happiness in his heart each day. We hope that our efforts will further assist those individuals dedicated to finding a treatment or cure, before this disease is able to take the sparkle out of his eyes and song out of his laughter.
In the beginning, it was hard to see any good come out of a situation that was so devastating. However, Ryan has taught us that every moment in this life matters. We plan to make every moment count! At times we forget how lucky we are to have tomorrow, when none of us really know what tomorrow may bring. Please help us to bring Ryan many more tomorrows....
Maria and David Schultz